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Our approach

We want our work, and the way we do it, to reflect the kind of change we hope to see. We believe in the power of organising for change.

In September 2025, a groundbreaking gene therapy brought new hope to the Huntington’s disease (HD) community, showing that it’s possible to slow the disease’s devastating effects. After years of setbacks, families and patients finally have reason to believe that real progress is being made.

For the first time in history, people outside of the HD community are paying attention. We want to hold this attention.

We are building a movement of people who believe access to medical treatment is a basic human right, and pooling a funding pot to allow this to happen.

Join the HD movement today.

Your donation will be channelled into three vital areas:

  • 1

    A movement of people that care about Huntington’s Disease.

    For too long the burden of fundraising and advocacy has been on the shoulders of a community that already holds too much. We are building a movement of people that will fight for the cure alongside us. The hope? That when we have to fight for the cure of Huntington’s Disease to be available to all, we have a worldwide movement of people behind us.

  • 2

    A fund to financially support families.

    Access to medical care is the foundation of our work. We believe that everyone should have access to medication, no matter their income. We are building a funding pot that individuals can access when in need.

  • 3

    A space for activism, organizing, and mobilisation.

    We want to continue to build the platform to share stories of families, individuals, and organisations that are working tirelessly to fight HD. Our stories are important, and they are too often lost in the weight and continual loss of Huntington’s Disease. We want to work alongside partner organisations already doing the vital work and to share the HD story to all.

Be part of the change. Stand with the families who cannot wait another generation.

This is more than a fundraiser–it is a turning point for the HD community. Together we can transform despair into hope, and hope into actionable change.

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