About Us
We are a community-led initiative and our work is governed by people who have been directly impacted by Huntington’s Disease.
Be part of the change. Stand with the families who cannot wait another generation.
This is more than a fundraiser–it is a turning point for the HD community. Together we can transform despair into hope, and hope into actionable change.
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Understanding Huntington’s Disease
Huntington’s disease (HD) is a hereditary neurodegenerative disorder caused by a mutation in a single gene.
This genetic alteration disrupts the normal production of a protein called huntintin, setting in motion a gradual process that affects nerve cells in the brain. Over time, HD impacts movement, cognition, and behavior–shaping not only the lives of those who inherit it, but also the families and communities who support them.
Understanding the disease, it’s progression, and the social and emotional dimensions of living with it is essential for building compassionate systems of support.